Data protection

Swiss League Against Epilepsy / Schweizerische Epilepsie-Liga
Seefeldstrasse 84
8008 Zürich

Authorised representatives
Our board

Name: Swiss League Against Epilepsy / Schweizerische Epilepsie-Liga

Data protection officer:
Julia Franke, director
+41 43 488 6777

Remark: In case of doubt, the German version applies.


Based on Article 13 of the Swiss Federal Constitution and the data protection provisions of the Swiss Confederation (Data Protection Act, DSG), every person has the right to protection of their privacy as well as protection against misuse of their personal data. The operators of these pages take the protection of your personal data very seriously. We treat your personal data confidentially and in accordance with the legal data protection regulations as well as this privacy policy.

In cooperation with our hosting providers, we make every effort to protect the databases as well as possible against unauthorized access, loss, misuse or falsification.

We would like to point out that data transmission on the Internet (e.g. communication by e-mail) can have security gaps. A complete protection of data against access by third parties is not possible.

By using this website, you consent to the collection, processing and use of data in accordance with the following description. This website can generally be visited without registration. Data such as pages accessed or names of files accessed, date and time are stored on the server for statistical purposes without this data being directly related to your person. Personal data, in particular name, address or e-mail address are collected as far as possible on a voluntary basis. Without your consent, the data will not be passed on to third parties.

We process personal data in accordance with Swiss data protection law.

Furthermore, to the extent and insofar as the EU GDPR is applicable, we process personal data in accordance with the following legal bases in connection with Art. 6 (1) GDPR:
lit. a) Processing of personal data with the consent of the data subject.
lit. b) Processing of personal data for the fulfilment of a contract with the data subject as well as for the implementation of corresponding pre-contractual measures.
lit. c) Processing of personal data for the fulfilment of a legal obligation to which we are subject under any applicable law of the EU or under any applicable law of a country in which the GDPR is applicable in whole or in part.
lit. d) Processing of personal data in order to protect the vital interests of the data subject or another natural person.
lit. f) Processing of personal data to protect the legitimate interests of us or of third parties, unless the fundamental freedoms and rights and interests of the data subject are overridden. Legitimate interests include, in particular, our business interest in being able to provide our website, information security, the enforcement of our own legal claims and compliance with Swiss law.

We process personal data for the duration required for the respective purpose or purposes. In the case of longer-term retention obligations due to legal and other obligations to which we are subject, we restrict processing accordingly.

This website uses cookies. These are small files that make it possible to store specific information related to the user on the user’s terminal device while the user is using the website. This enables the website to “remember” certain entries and settings (e.g. login, language, font size and other display preferences) over a certain period of time, and you do not need to enter them again each time you visit and navigate the portal.

On our website, we use cookies to analyse the use of our website. This relates, for example, to your decision to (or not to) use cookies on this portal. Also, some videos embedded on our pages use cookies to create anonymous statistics about the previously visited pages and the selected videos.

If you do not wish this to happen, you can set your Internet browser so that it refuses to accept cookies. Please note that in this case possibly not all functions of this website can be used.

This website uses SSL/TLS encryption for security reasons and to protect the transmission of confidential content between your browser and our server, such as requests that you send to us as the site operator. You can recognize an encrypted connection by the fact that the address line of the browser changes from “http://” to “https://” and by the lock symbol in your browser line.

If SSL or TLS encryption is activated, the data you transmit to us cannot be read by third parties.

If you send us inquiries via a contact form, your data from the inquiry form including the contact data you provided there will be stored by us for the purpose of processing the inquiry and in case of follow-up questions. We do not pass on this data without your consent.

We pass on general membership data (name, postal and e-mail address) to our umbrella organisation, the International League Against Epilepsy (ILAE), as well as to the organisers of the so-called “three-country conference”, unless the member objects. In this way, members benefit from discounts for events and subscriptions. The ILAE and other partners have undertaken not to pass on the information to third parties.

Members who wish to subscribe to one or more of the professional journals available to them agree to their contact details being passed on to the relevant publisher(s). These publishers may not pass on the details but may use them solely for the purpose of sending out the said publication and to check eligibility for the protected online access area.

In certain cases and in connection with our purpose, we also collect particularly sensitive data, e.g. health information. These are only stored internally and are only passed on to third parties in justified cases with the consent of the respective individual.

On our website you can make a donation or process a payment easily and securely via the Internet. You can use debit or credit cards as well as TWINT. The donation form is processed by RaiseNow. This company fulfils all the guidelines of the financial authorities and IT security standards and is PCI-DSS-certified (Payment Card Industry Data Security-Standard). All transactions are encrypted and transmitted via SSL. The data you provide in connection with your donation, i.e. the amount, the purpose of your donation and your address, are stored in our donation database.

The personal data of our donors is managed by the company Comconsult (Kirchweg 5, 8008 Zurich) in a database certified by the Swiss Federal Data Protection Commissioner. The Epilepsy League has concluded a contract with the company Comconsult for commissioned data processing within the meaning of the Data Protection Act, in which the company undertakes to do everything in its power to comply with the purpose of the data processing and to observe the legal regulations of the Data Protection Act.

If you wish to exercise any of the rights listed below, you may, at any time, contact the Data Protection Officer.

Right to confirmation

Every data subject has the right to request confirmation from the website operator as to whether personal data concerning him or her are being processed.

Right of access

Every person affected by the processing of personal data has the right to receive information free of charge from the operator of this website at any time about the personal data stored about him or her and a copy of this information.

Furthermore, the data subject has the right to be informed whether personal data have been transferred to a third country or to an international organization. If this is the case, the data subject also has the right to obtain information about the appropriate safeguards in connection with the transfer.

Right to rectification, erasure or restriction

Every person affected by the processing of personal data has the right, under certain conditions, to demand the immediate correction of incorrect personal data concerning him or her, the erasure of personal data concerning him or her or the restriction of data processing.

Right to data portability

Every person affected by the processing of personal data has the right to receive the personal data concerning him or her in a structured, common and machine-readable format. He or she also has the right to have this data transferred to another controller if the legal requirements are met.

Furthermore, the data subject has the right to obtain that the personal data be transferred directly from one controller to another controller, insofar as this is technically feasible and insofar as this does not adversely affect the rights and freedoms of other persons.

Right of objection

Any person affected by the processing of personal data has the right to object at any time, on grounds relating to his or her particular situation, to the processing of personal data concerning him or her.

The operator of this website shall no longer process the personal data in the event of the objection, unless we can demonstrate compelling legitimate grounds for the processing which override the interests, rights and freedoms of the data subject, or if the processing serves the purpose of asserting, exercising or defending legal claims.

Right to revoke a data protection consent

Every person affected by the processing of personal data has the right to revoke a given consent to the processing of personal data at any time.


The use of contact data published within the framework of the imprint obligation to send advertising and information materials not expressly requested is hereby prohibited. The operators of the pages expressly reserve the right to take legal action in the event of the unsolicited sending of advertising information, such as spam e-mails.

All information on our website has been carefully checked, especially all information regarding epilepsy. We make every effort to ensure that the information we provide is up-to-date, correct and complete. Nevertheless, the occurrence of errors can not be completely excluded, so we can not guarantee the completeness, accuracy and timeliness of information.

Liability claims regarding damage caused by the use of any information provided, including any kind of information which is incomplete or incorrect, will therefore be rejected.

The publisher may change or delete texts at his own discretion and without notice and is not obliged to update the contents of this website. In most cases, you can see on the respective page when the last update was made.

The use of or access to this website is at the visitor’s own risk. The publisher, its clients or partners are not responsible for damages, such as direct, indirect, incidental, consequential or punitive damages, allegedly caused by the visit of this website and consequently assume no liability for such damages.

On our website, we also publish links to external offers that seem recommendable to us. We only do this if no misleading or illegal content was apparent on the linked pages at the time the link was created.

However, we have no influence on the future design of these sites. Therefore, we cannot assume any responsibility for recommended pages that were changed after the link was set. The provider of the respective page is solely liable for illegal, incorrect or incomplete content and in particular for damages arising from the use of such information.

This website uses the offer of Google Maps. This allows us to display interactive maps directly on the website and enables you to comfortably use the map function. By visiting the website, Google receives the information that you have accessed the corresponding subpage of our website. This occurs regardless of whether Google provides a user account through which you are logged in or whether there is no user account.

If you are logged in to Google, this data will be directly assigned to your account. If you do not want the assignment with your profile at Google, you must log out before activating the button.

Google stores your data as usage profiles and uses them for the purposes of advertising, market research and/or demand-oriented design of its website. Such an evaluation is carried out in particular (even for users who are not logged in) to provide needs-based advertising and to inform other users of the social network about your activities on our website.

You have the right to object to the creation of these user profiles, whereby you must contact Google to exercise this right. For more information on the purpose and scope of data collection and processing by Google, as well as further information on your rights in this regard and settings options for protecting your privacy, please visit:

In the events section, we offer to save the currently displayed event as an appointment in “Google Calendar”.

For this purpose, a link is generated that points to and contains information about the event currently displayed, such as the date, location, title, etc. of the event. This link does not contain any information about your browser or your internet connection such as IP numbers, date, etc., but only information about the event currently shown on our website.

This website uses the reCAPTCHA service of Google Ireland Limited (Gordon House, Barrow Street Dublin 4, Ireland “Google”). This function serves the purpose of distinguishing whether the input is made by a human or by automated, machine processing. The query includes the sending of the IP address and possibly other data required by Google for the reCAPTCHA service to Google.

For this purpose, your input is transmitted to Google and further used there. However, your IP address will be shortened beforehand by Google within member states of the European Union or in other contracting states of the Agreement on the European Economic Area. Only in exceptional cases will the full IP address be transmitted to a Google server in the USA and shortened there.

On behalf of the operator of this website, Google will use this information to evaluate your use of this service. The IP address transmitted by your browser as part of reCaptcha will, according to Google, not be merged with other data from Google. Your data may also be transmitted to the USA in the process.

For data transfers to the USA, there is an adequacy decision of the European Commission, the «Privacy Shield». Google participates in the «Privacy Shield» and has submitted to the requirements. By pressing the query, you consent to the processing of your data. The processing is based on Art. 6 (1) lit. a DSGVO with your consent. You can revoke your consent at any time without affecting the lawfulness of the processing carried out on the basis of the consent until revocation.

You can find more information about Google reCAPTCHA and the associated privacy policy at:

This website uses Google Analytics, a web analytics service provided by Google Ireland Limited. If the data controller on this website is located outside the European Economic Area or Switzerland, then the Google Analytics data processing is carried out by Google LLC. Google LLC and Google Ireland Limited are hereinafter referred to as «Google».

The statistics obtained enable us to improve our offer and make it more interesting for you as a user. This website also uses Google Analytics for a cross-device analysis of visitor flows, which is carried out via a user ID. If you have a Google user account, you can deactivate the cross-device analysis of your usage in the settings there under «My data», «Personal data».

The legal basis for the use of Google Analytics is Art. 6 para. 1 p. 1 lit. f DS-GVO. According to Google, the IP address transmitted by your browser as part of Google Analytics will not be merged with other data from Google.

Only in exceptional cases will the full IP address be transferred to a Google server in the USA and shortened there. On behalf of the operator of this website, Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity and providing other services relating to website activity and internet usage to the website operator. For the exceptional cases in which personal data is transferred to the USA, Google has submitted to the EU-US Privacy Shield,

Google Analytics uses cookies. The information generated by the cookie about your use of this website is usually transmitted to a Google server in the USA and stored there. You may refuse the use of cookies by selecting the appropriate settings on your browser, however please note that if you do this you may not be able to use the full functionality of this website.

The plug-in has been developed by Smash Balloon LLC in the USA (“provider”) and is offered as a WordPress plug-in or as a stand-alone PHP plug-in. The plug-in enables us to display the newsfeed of our Facebook page directly on our website. To do this, the plug-in retrieves the information from Facebook and integrates it into our website. According to current knowledge, no cookies are set in your browser by this plug-in that collect, process or use personal data. Nevertheless, we cannot completely rule out the possibility that personal data (e.g. IP addresses, browser data or similar) may be transmitted to the provider of the plug-in or Facebook.

If you click on a link in the newsfeed, you will be redirected to our Facebook fan page. In this case, Facebook stores the website from which you accessed our Facebook page. For more information on what data is collected, processed or used when you access the Facebook pages, please refer to Facebook’s privacy policy. The complete functional scope of the plug-in can be found at and Further information on Smash Balloon’s data protection can be found here:

If you do not want this data to be associated with your Facebook account, please log out of Facebook before visiting our site. Interactions, in particular the use of a comment function or the clicking of a “Like” or “Share” button are also passed on to Facebook. You can learn more at .

Functions of the «YouTube» service are integrated on this website. «YouTube» is owned by Google Ireland Limited, a company incorporated and operated under the laws of Ireland, with its registered office at Gordon House, Barrow Street, Dublin 4, Ireland, which operates the services in the European Economic Area and Switzerland.

Your legal agreement with «YouTube» consists of the terms and conditions found at the following link: These Terms constitute a legally binding agreement between you and «YouTube» regarding your use of the Services. Google’s Privacy Policy explains how «YouTube» treats and protects your personal information when you use the Service.

The social plugins used on our website generate links that refer to the “Share” function of the corresponding social media platform (LinkedIn or Facebook). These links contain information about the page currently displayed.

These links do not contain any information about your browser or your internet connection such as IP numbers, date, etc., but only information about the currently displayed page of our website. If this page is an event, further information about this event will be generated in the link.

Among other things, tools from companies based in the USA are integrated on our website. If these tools are active, your personal data may be transferred to the US servers of the respective companies. We would like to point out that the USA is not a safe third country in the sense of EU data protection law. US companies are obliged to hand over personal data to security authorities without you as a data subject being able to take legal action against this. It can therefore not be ruled out that US authorities (e.g. intelligence services) process, evaluate and permanently store your data located on US servers for monitoring purposes. We have no influence on these processing activities.

We reserve the right to amend this privacy policy at any time without prior notice.
The current version published on our website shall apply.

Insofar as the data protection declaration is part of an agreement with you, we will inform you of the change by e-mail or other suitable means in the event of an update.


The Swiss League Against Epilepsy assumes no liability for the correctness, accuracy, timeliness, reliability and completeness of the information.

Liability claims against the author for material or immaterial damage resulting from access to, use or non-use of the published information, from misuse of the connection or from technical malfunctions are excluded.

All offers are non-binding. The Epilepsy League expressly reserves the right to change, add to, or delete parts of the pages or the entire offer without prior notice, or to temporarily or permanently cease publication.

Last updated: October 2023